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Majority of Americans Would Participate in Clinical Trials if Recommended by Their Doctor
"Most Americans believe in the promise of research and are willing to share their personal health data to advance research; yet for many years now the percentage of people who participate in clinical trials has remained incredibly low," said Mary Woolley, president and CEO of Research!America.
Compared to other ways volunteers contribute to the health of society, clinical trial participation is neither as visible nor as much admired. When asked how much they admire volunteers, nearly 70% say they admire organ donors a great deal, followed by admiration for people who give blood (61%); clinical trial volunteers are admired by only 37%.
In recent meetings with experts from minority health organizations, we have learned that there are cultural differences regarding attitudes toward medical research. For instance, African-Americans are often more distrustful of medical research and Latinas require more family involvement in decision-making.
A recent article of the Society for Women's Health Research (SWHR) makes the point that historically, biomedical scientists and researchers have preferred studying male subjects for a variety of reasons including:
SWHR broke down these rationales and sought to have it understood by the scientific community that:
Read about barriers to participation of women in clinical trials and SWHR proposed solutions here.
Women's Health Registry Alliance
April 6-7, 2017
Alliance for Innovation on Maternal Health
April 10, 2017
Association of Women's Health, Obstetric, & Neonatal Nurses
April 25, 2017
Monroe Township, New Jersey