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We are excited to announce the launch of The Preeclampsia Registry™, a patient and family database designed to aid and accelerate preeclampsia research! Whether you are somebody who had a hypertensive disorder of pregnancy like preeclampsia, eclampsia or HELLP syndrome, or are a family member of somebody who did, we invite you to enroll and participate in The Preeclampsia Registry.
The Preeclampsia Registry™ is the first of its kind to focus solely on hypertensive disorders of pregnancy to bring together survivors, family members, and researchers from all over the world with the purpose of developing a comprehensive picture of preeclampsia and discovering preventions and treatments, including ones that will reduce its long-term impact.
The Preeclampsia Registry™ is a place to share your health and pregnancy history and even pose your own research questions, thus creating a significant resource for researchers to gather data and start new studies. Participation in any study is entirely optional.
To participate in The Preeclampsia Registry™ :
In the future, you may be asked to sign a medical records release form to allow The Preeclampsia Registry Administrator to request your medical records.
After enrollment in the Registry, and with your permission, you can expect the following:
We appreciate your continued support to help us accelerate our understanding of preeclampsia. If you have any questions, please email our Research Coordinator, Alina Brewer, at Registry@preeclampsia.org or call us at 321-421-6957.
California Maternal Quality Care Collaborative
Preeclampsia Toolkit Review and Patient Support
September 25, 2015
Dignity Health Summit, Las Vegas, NV
October 1-2, 2015
Grand Rounds - Tampa General Hospital, Tampa FL
October 28, 2015
March of Dimes Prematurity Prevention Conference
Crystal City, VA
November 17, 2015
11th Annual Texas Conference on Health Disparities
Ft. Worth, TX
June 9-10, 2016