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ABOUT US

Last Updated on Wednesday, October 01, 2014

Thousands of women and babies die or get very sick each year from a dangerous condition called preeclampsia, a life-threatening disorder that occurs only during pregnancy and the postpartum period. Preeclampsia and related disorders such as HELLP syndrome and eclampsia are most often characterized by a rapid rise in blood pressure that can lead to seizure, stroke, multiple organ failure and death of the mother and/or baby.

The Preeclampsia Foundation is an empowered community of patients and experts, with a diverse array of resources and support to help you have the best possible pregnancy or to help you navigate the questions you’ll have if you don’t. We provide unparalleled support and advocacy for the people whose lives have been or will be affected by the condition – mothers, babies, fathers and their families.

We are steadfast in our resolve to improve diagnosis, management and prevention of preeclampsia through research and improved healthcare practices.

In the meantime, because all pregnancies are at risk, our best defense against the worst outcomes is to ensure patients understand and appropriately respond to the warning signs of preeclampsia. The problem is, few people are aware and adequately informed.

With your help, we can drive awareness, advance our scientific understanding and medical practices, and together help create a world where preeclampsia and hypertensive disorders of pregnancy no longer threaten the lives of mothers and babies. 


OUR MISSION

The Preeclampsia Foundation reduces maternal and infant illness and death due to preeclampsia, HELLP syndrome, and other hypertensive disorders of pregnancy by providing patient support and education, raising public awareness, catalyzing research and improving healthcare practices.  We envision a world where preeclampsia no longer threatens the lives of mothers and babies.


WHO WE ARE

Established in 2000, we are the only national 501(c)(3) not-for-profit patient advocacy organization serving the 5-8% of pregnant women - 300,000 women each year in the U.S. -  who are affected by hypertensive disorders of pregnancy such as preeclampsia (formerly known as toxemia), eclampsia and HELLP syndrome.

We are advised by a medical board comprising the top medical and scientific experts in preeclampsia and related fields, additionally partnering with other non-profit organizations, governmental agencies, academic institutions, and corporations to achieve our mission. Our corporate Tax ID Number is 91-2073087.


WHAT WE DO

Educate, support and empower women – and their friends and loved ones - on the warning signs, long term consequences and medical understanding of preeclampsia, including their need to get timely, appropriate care.

  • 700 active volunteers trained in awareness-raising, patient support and education, including online forum moderators
  • 2,250 stories shared by survivors and/or their family members

Increase public awareness of preeclampsia, including raising global attention on this devastating maternal-fetal health issue.

  • 38 cities hosting the Promise Walk for Preeclampsia across the US in 2014
  • 5,000 new visitors to our website (www.preeclampsia.org) every day

Enable professional training, resources and research to improve the clinical practices of health care providers.

  • 140,000 patient education brochures and materials distributed to clinics, health centers, and provider offices
  • 500 health care providers educated through in-person and online CME/CEU courses and symposia over the past three years

Fund and advocate for research and improved policies to meet critical gaps in scientific knowledge and inspire new thinking.

  • $550,000 in research funding awarded to date
  • 5,000 participants recruited for research studies
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