Articles

BY REBEKA WHITMAN

 

It wasn't until my sister Rikki became pregnant with her first child that I understood the full meaning of pregnancy problems. She was 35, had Ulcerative Colitis, an autoimmune disease, and had difficulty becoming pregnant. She and her husband were looking forward to the birth of their son. On November 8, at 22 weeks, she developed HELLP Syndrome and the only option was to deliver the baby. Rikki's liver, heart and lung functions were deteriorating significantly. As I waited at the hospital with other family members, I asked the doctor, "Can't you wait until he is a few weeks older so that he has some sort of chance?" The doctor told me if they ...

Are you a Pinterest addict? Enjoy expressing your life experiences visually? Then join our 2013 "Virtual Memorial & Survivor Quilt" board. The Virtual Quilt board is a compilation of images from any individual who wants to contribute in honor or in memory of loved ones impacted by preeclampsia, HELLP syndrome, or other hypertensive disorders of pregnancy. Share your feelings and experience with preeclampsia through pin art!

Having your pin as a part of the quilt only requires ...

LETTER FROM THE EXECUTIVE DIRECTOR, ELENI TSIGAS

It's hard to imagine the impact that a public awareness event like The Promise Walk for Preeclampsia™ can have on the consciousness of the public, our elected officials, health care providers and researchers, but with 44 walks scheduled in major markets across the United States, we are making strides and delivering hope!

Ten years ago, I daresay not too many people had heard the word "preeclampsia."  Now the media often cover the latest research or provide helpful education, for example, CNN's February article on five things you need to know ...

It's March... which in Florida means spring training for Major League Baseball. In fact, I can practically hear the crack of the bat just ten minutes from our headquarters! But the real home runs are happening for the Preeclampsia Foundation all across the country. We're halfway to Preeclampsia Awareness Month, and our Promise Walk teams all across the United States are knocking it out of the ballpark! 

Fundraising teams have used our new tools and are doing a superb job, putting our Promise Walk $7,000 ahead of where we were last year. And not only will we be celebrating our first-ever national designation, but 16 states and cities have declared May Preeclampsia Awareness Month in their jurisdictions. Read on for an interesting article that describes why that is so important to our advocacy ...

Awareness that good outcomes don't always happen helps us prepare while hoping for the best.

Just because a pregnancy is classed as high-risk doesn't mean that it will become medically complicated - and just because a pregnancy is classed as low-risk doesn't mean that it won't. Many of us know this firsthand; we were low-risk right up until the complications developed in our first preeclamptic pregnancy, or went into a subsequent pregnancy classified as high-risk, only to breathe a sign of relief as we delivered a full-term healthy baby.

We've all seen the list of risk factors for preeclampsia: first pregnancy, personal or family history of preeclampsia, underlying conditions like chronic hypertension or lupus or autoimmune conditions, obesity, history of infertility or prior miscarriage. Awareness of your ...

One of the wonderful aspects of living in the United States is that you can directly influence the government process at the local, state, and federal levels. This influence only requires passion and persistence. While the Preeclampsia Foundation is thrilled that our collective passion and persistence led to May 2013 becoming the first federally-recognized National Preeclampsia Awareness Month, our work is far from over. We still need your help to secure more state and local preeclampsia awareness proclamations.

You may be asking why a local or state proclamation has value if the federal government already designated the month of May for preeclampsia.

Be aware of your long-term health risk factors and communicate them.

We've all seen the risk factors for cardiac disease: high blood pressure, high cholesterol, inactivity, obesity, smoking, and history of preeclampsia. Awareness of your own risk factors is key to managing them as you age and might lower risk of cardiac disease.

A recent analysis of the accuracy of our recall of our pregnancy histories by a team of researchers at the Harvard School of Public Health showed that we may not remember our complicated pregnancies well enough for questions about them to be a useful part of a screening tool. For our recall to be useful as a clinical tool in screening for heart disease, we need to be mostly accurate in our recollections years after delivery. (Imagine a 55 year old in her internist's office this week, asked for details of her pregnancy 30 years ago...) But the analysis also showed that as severity of our pregnancy complications increased, accuracy of ...


"Loss makes artists of us all as we weave new patterns in the fabric of our lives."~ Greta W. Crosby, Author of Tree and Jubilee, a book of meditation

 

 

Writing about any situation will help you gain perspective on it. Many people find they can identify and express their feelings through journaling. This expression not only contributes to our self-awareness, it also contributes to healing through the letting out of emotions, self-acceptance, and the identification of any negative self-talk patterns that we should and can intentionally replace with positive ...

Remember the moment when you embraced maternity clothing? After a few months wearing "roomy" jeans and shirts, you made the leap into a wardrobe consisting of blouses with an empire waist. 

There are very few times in our life you wear a patient status so conspicuously. Walking around in maternity clothing informs everyone of your current status. Unlike most other conditions, random strangers remark upon your wellbeing. When things are going well, these remarks can be appreciated as well intentioned. When things are not going well, these random comments can be heartrending.

It is hard to wear our medical status in public. It is hard to bear our soul. But pregnancy is finite; we only have a few months of "showing." Sometimes we have been blessed and become the parent of a new baby and sometimes a life ends before it begins.

The body returns, but a story remains. And I ask you, "Are you showing?"

There is a patient art movement spreading around the ...

Unless you have been completely untethered from all media this week, you know that a popular character on British historical drama Downton Abbey died from postpartum eclampsia, shocking and devastating over 8 million devoted viewers. In her death, Lady Sybil became our unwitting celebrity spokesperson!

With advance knowledge of this surprising plot element, thanks to our sister organization in the UK where the show aired last fall, our team developed a simple but savvy public relations campaign, including an Op-Ed piece in the Daily Beast, a press release, a newly released

When we think about maternal deaths, visions of thin, malnourished women lying on cots in thatched-roof cots immediately come to mind, when in fact they occur right in our backyard. In the U.S., preeclampsia is one of the four most common reasons for maternal death. On an average, there is approximately 1 maternal death for every 100,000 births, but for African American women, this number triples. African American women are three times more likely to die from preeclampsia and other childbirth-related issues and no one knows why.

As our society becomes more culturally diverse, this problem will indirectly affect all of us. Our daughters and granddaughters may no longer look like us ethnically but carry genes that places them at risks for complications associated with a particular race. While we attempt to unravel the mystery of what causes preeclampsia, an equally mystifying dilemma is to determine why are African American women more at risk for developing and then dying ...

Encore Public Relations was named a Bronze Stevie Winner in the PR Campaign of the Year/Community Relations category in the 9th annual Stevie® Awards for Women in Business on November 9 for their work with the Preeclampsia Foundation. Encore Public Relations lead strategy efforts and execution for a multi-platform campaign that raised awareness during the 2012 annual Promise Walks for Preeclampsia across the country.   

"Ironically, it was during this same weekend last year when we had the good fortune to meet Laurie and Elaine in New York City," said Eleni Tsigas, Preeclampsia Foundation's executive director. "The women were in town for another honor they were receiving and via wonderful circumstances, we were brought together at Saving Grace, our annual benefit gala."

Laura Archbold, principal of Encore Public Relations, upon receiving their award, said. "We humbly accept this honor on ...

By Dr. Anne Wallis ~ Who remembers the first season ER episode "Love's Labours Lost"? The answer: pretty much anyone who ever watched ER! In the episode, a pregnant woman presents to the emergency room with a complaint of bladder problems, has a seizure and later dies. This was my first exposure to the hypertensive disorders of pregnancy. Eclampsia is, thankfully, rare, but it carries a high case fatality rate for the mother and/or the infant. Gestational hypertension and preeclampsia are far more common, affecting between 5% and 8% of all pregnancies in the US. Moreover, these conditions are on the rise and globally, these conditions are a leading cause of maternal and infant illness and death.

Obstetric providers are acutely aware of the dangers of preeclampsia because of its potential severity and rapidity of onset and progression, making high-quality prenatal ...

I was thrilled to be able to announce to resounding applause, "It's official! The US Department of Health and Human Services has declared May National Preeclampsia Awareness Month!" at our annual benefit dinner, Saving Grace - A Night of Hope, on Friday, Oct. 26, in Point Clear, Alabama. The intimate evening was hosted by Leslie Weeks, former board member of the Preeclampsia Foundation and Owen Bailey, hospital administrator for University of South Alabama's Children's & Women's Hospital.

Board members and long-time volunteers of the Preeclampsia Foundation flew in from around the country to take part in this annual benefit dinner, this year held in a beautiful and tranquil setting, the Sonny Hill Polo Complex. A buffet style dinner was held in the beautifully appointed pavilion, followed by a program under a delicately lit tent that overlooked the water. Dr. Gabriella ...

Shelly Bridgewater was 25 years young when she died in 2005 from preeclampsia. Her best friend, Bree Housley, wrote a book about their unlikely friendship and the impact Shelly, "the social butterfly," had on her life. We Hope You Like this Song launches this week and is available in our Marketplace. We talked with Housley about inspiration, Karaoke, and how the Preeclampsia Foundation helped her healing.

What inspired you and your sister to embark on your yearlong tribute to Shelly ...

1. What was your experience with preeclampsia?

I developed HELLP Syndrome in 2009. Not knowing the symptoms of HELLP delayed my response to getting help faster. I went to the ER after three days of right upper quadrant pain (which I was told by the doctor on call that it was probably my gall bladder even though I was on bed rest for high blood pressure), difficulty breathing, and a sense of just not feeling well. I was told by the Labor and Delivery nurse I had made it just in time. When I arrived my platelets were dangerously low, my liver was enlarged and my blood pressure was high. They feared I was going to bleed out during delivery and prepped me for a transfusion. There is no scarier feeling than feeling like you might die during what is supposed to be the happiest time in your life. I delivered my son, Cooper, at 36 weeks. He was only 4lbs 13 oz. Although he was tiny and his platelets were low, he miraculously did not have to go into the NICU. We ...

Preeclampsia Foundation volunteers in different parts of the country have been taking advantage of Perinatal Outreach Educator Networks to disseminate information about the Preeclampsia Foundation and advocate for more patient education.

An unexpected outcome from one of these discussions came from Maripat Zeschke, RNC-EFM, MSN, LC who is the Perinatal Network Administrator at the University of Illinois Administrative Perinatal Center. She asked a simple, but powerful, question of the preeclampsia survivors who were presenting: "What do you think we, as nurses, could do to support patients when they are in a situation similar to yours?"

Zeschke said that her question "comes from a long history of being committed to patients. Nursing is the perfect blend of art and science, and being at the bedside is the essence of the art.  I've seen so many patients with devastating preeclamptic stories, and I think it's amazing when survivors can relive it on a regular ...

A recent study in the September 2012 issue of Obstetrics & Gynecology took a look at the seasonal flu vaccine, recognizing that many women are concerned (check out our forum posts about it, here and here) about introducing any drugs or vaccinations during pregnancy.

During the 5-year study period, over 10,000 women received the seasonal influenza vaccine while they were pregnant, a few ...

By Dr. Linda Burke-Galloway ~ October is Patient Centric Care Month, a term you will likely see more of as our healthcare system moves further into the 21st century. What does 21st century healthcare look like? It means that all of your records will be computerized and not on paper. It means that you will receive your "chart" on a flash drive so that when if you leave your physician's office and go to a hospital, your health records remain with you. Gone will be the days when your labs will have to be repeated because no one can locate your prenatal chart. Repeating labs is not only annoying, it's costly.

"Patient Centric Care" means that the emphasis will no longer center on your physician. Or a hospital. Or an ambulatory care center. It will be centered on you, the patient. Why? Because at the end of the day, if you're not well, if the outcome was less than expected, then the system has failed. The $2.3 trillion dollars spent each year on healthcare has not ...

A recent Preeclampsia Foundation survey reveals that most women feel that books that provide complete and accurate information about preeclampsia would help them approach their pregnancies as empowered patients. The survey, conducted as a follow-up to the May release of the Preeclampsia Foundation's Report on the Top 10 Pregnancy Books, asked women about the pregnancy books they used during their pregnancies and about their feelings regarding the preeclampsia information contained in those books.

All respondents were entered into a contest to receive a signed copy of one of the top 3 books and a Preeclampsia Foundation gift basket. Congratulations go to Melissa S., Teri P., and Laura R. for winning the random drawing! 

Not surprisingly, the majority of respondents (69%) reported that they relied on the bestselling What to Expect When You're Expecting by Heidi Murkoff and Sharon Mazel ...

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