Need Support? These Volunteers Are Here to Help

Posted in Preeclampsia Information on

Losing a child is one of the hardest life experiences anyone can endure and can be difficult for other to understand. Add in the trauma of preeclampsia and your emotional shoulders may not be big enough. Who can you turn to that really understands everything you have gone through? The Preeclampsia Foundation offers several avenues of support.

The Patient Support Network is made up of volunteer members that have each lost a child. Each member has a different experience and viewpoint that enables the network to offer specific support based on each family's circumstances. Since its creation in February, the group has responded to 13 families that have recently lost a baby due to preeclampsia. Through condolence cards, phone calls and emails, the group listens and walks besides families during the darkest days of their grief journey. To contact the Patient Support network, simply call our toll-free line at 800-665-9341 or email Nicole Purnell.

The broadest support is offered via the online community forums, where hundreds of preeclampsia survivors are available to offer virtual hugs to anyone in need of support. The forums have different sections including a Grief and Loss section for those who have lost a child or loved one to preeclampsia. The forum sections are all led and supported by moderators who have personally experienced preeclampsia.

If writing and sharing your story is your therapy, there are two options through the website and forum. The "Share Your Story" section has over 1,100 stories from survivors and families posted on the website. There is also a section in the forum called "Writing Heals". This section is meant as a creative outlet for writing that brings comfort to the hurting.

Thanks to Anne Stone, Jennifer Joyce, Jenny Smith, Melissa Muir, Nicole Purnell and Rosemary Jorden for all the support you have offered to grieving families. If you interested in supporting families that have recently lost a baby or mother, please contact Nicole Purnell for further information. Wishing you hope in the midst of sorrow, comfort in the midst of pain.

 
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The Preeclampsia Registry

    The Preeclampsia Registry is a "Living Database" bringing together those affected, their family members, and researchers to advance knowledge and discover preventions and treatments for preeclampsia, HELLP syndrome, and related hypertensive disorders of pregnancy.

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