• Bookmark and Share

Registry Off to a Strong Start

Last Updated on Saturday, October 05, 2013

The launch of The Preeclampsia Registry™ is off to a strong start. Three hundred individuals have entered information that will help generate hypotheses and test ideas. Investigators are already planning research studies that will use this unique data set. Nowhere is it more true than in a disease registry that every person makes a difference. We look forward to more of you sharing your pregnancy history and longer-term health information.

Research Published in Peer-Reviewed Journal

The staff of the Preeclampsia Foundation are honored to occasionally partner with investigators to publish colloborative research. It's been a while in coming but we are excited this week about the November publication of a patient study initiated and funded by The Preeclampsia Foundation in 2008 and with data analyzed in 2011. The paper, "Prenatal education is an opportunity for improved outcomes in hypertensive disorders of pregnancy: results from an Internet-based survey," was published in the November 2013 issue of the Journal of Maternal Fetal Neonatal Medicine. Its authors are the Foundation's Executive Director, Eleni Z. Tsigas, and three preeclampsia researchers: Dr. Anne B. Wallis, Dr. Audrey F. Saftlas, and Dr. Baha M. Sibai.

Their paper reports on our 2008 survey of 754 women who visited the Preeclampsia Foundation website, in which we found that most received prenatal checkups and regular screenings, but only 42% "definitely" recalled specific education about preeclampsia and only half "fully understood" the explanation. However, 27 of the 169 women (75.0%) who understood acted on this knowledge by promptly reporting symptoms and complying with treatment. Of the 46 who did not remember some or any of the education, only 3 (6.0%) took any action. The difference between these two groups is highly significant.

The authors conclude that knowledge enables women to spot signs and symptoms, leading to earlier diagnosis and management, and to reduced morbidity and mortality. They propose the adoption of formal guidelines on preeclampsia education.

Survey studies like this one can be accelerated through our registry of preeclampsia survivors, as registrants will be invited to participate in future surveys.

Feedback from last month's Expectations newsletter indicated your enthusiasm to support research. The Boston Promise Walk Facebook page proclaimed "The dollars we raise here in Boston go to supporting research initiatives like those highlighted in the PF's Expectations newsletter this month. Did you know that there is major preeclampsia research right here in numerous institutions and corporations in our own community? Really cool stuff."


We’ll be Speaking Here

International Society for the study of Hypertension in Pregnancy
October 23, 2016
San Paulo, Brazil


Mississippi Perinatal Quality Collaborative
October 24, 2016
Illinois Perinatal Quality Collaborative Annual Meeting
November 3, 2016
Lombard, IL
Florida Perinatal Quality Collaborative
Preeclampsia Experts - Florida Road Tour
November 8-10, 2016
Multiple Florida Locations
Association of Women's Health, Obstetric and Neonatal Nurses
November 17, 2016
Monroe Township, New Jersey
Grand Rounds, University of Miami
December 15, 2016
Miami, Florida

Invite Us to Speak at Your Event


Preeclampsia in the News

Featured Video

What’s Happening on Twitter

Preeclampsia RT @cmqcc: CMQCC is grateful and honored to receive the @LamazeAdvocates Presidents Award for our work to improve maternal health #Lamaze1
Preeclampsia RT @cmqcc: Partners in making birth safe & healthy, improving outcomes for mothers & babies #lamaze16 https://t.co/zZYwdI0GbY
Preeclampsia We're excited to head down to #Lamaze16 today! Come see the delightful @LaneyPoye at booth #8! <3

Press Releases by Year

Other Resources

JOIN OUR MAILING LIST. We respect your privacy.