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The Preeclampsia Registry Growing

Last Updated on Wednesday, July 09, 2014

We've made substantial progress with The Preeclampsia Registry since last month and now have 925 enrolled participants.  This living database brings together those affected, their family members, and researchers to advance knowledge and discover preventions and treatment for preeclampsia, HELLP syndrome, and related hypertensive disorders of pregnancy.

We're asking participants of The Preeclampsia Registry to upload their medical records, which makes the information collected even more valuable for scientific research by confirming your information with clinical or hospital records. As always, this information is never shared with qualified investigators without de-identifying it first. Your personal information is fully protected as explained in The Preeclampsia Registry's informed consent process.

It's as Easy as One, Two, Three

To Enroll:

    Go to www.preeclampsiaregistry.org and complete the online registry questionnaire
    Allow us to gather information from your medical records
    Return to our website at least yearly to provide an update

To Upload Your Medical Records:

    Contact your healthcare providers to check if they offer online portals for patients to access, download, and share their medical records (if this service isn't available, gather your medical records directly from your providers)
    After you've enrolled, log onto www.preeclampsiaregistry.org and go to "MyRegistry"
    Use the "Upload Medical Records" feature

For more information on secure online electronic access to medical records, visit http://www.healthit.gov/ or watch this video.

New Feature Shows How You Compare

Enrolled participants can also now explore the many bar graphs and pie charts in the "How Did Others Respond?" section of their MyRegistry page to see how others responded to the Registry questions. For example, they can find out the percentage of participants who experienced similar symptoms, treatments, and outcomes.

Take this pie chart as an example: It shows responses to the question, "Did you receive treatment with magnesium sulfate during this pregnancy?" As you can see, 75 percent of respondents indicated yes, 20 percent answered no, and five percent either didn't know or didn't answer.

For more information, please visit www.preeclampsiaregistry.org.


We’ll be Speaking Here

International Society for the study of Hypertension in Pregnancy
October 23, 2016
San Paulo, Brazil


Mississippi Perinatal Quality Collaborative
October 24, 2016
Illinois Perinatal Quality Collaborative Annual Meeting
November 3, 2016
Lombard, IL
Florida Perinatal Quality Collaborative
Preeclampsia Experts - Florida Road Tour
November 8-10, 2016
Multiple Florida Locations
Association of Women's Health, Obstetric and Neonatal Nurses
November 17, 2016
Monroe Township, New Jersey
Grand Rounds, University of Miami
December 15, 2016
Miami, Florida

Invite Us to Speak at Your Event


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What’s Happening on Twitter

Preeclampsia RT @cmqcc: CMQCC is grateful and honored to receive the @LamazeAdvocates Presidents Award for our work to improve maternal health #Lamaze1
Preeclampsia RT @cmqcc: Partners in making birth safe & healthy, improving outcomes for mothers & babies #lamaze16 https://t.co/zZYwdI0GbY
Preeclampsia We're excited to head down to #Lamaze16 today! Come see the delightful @LaneyPoye at booth #8! <3

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