Kelli Caudill, the mother of Kylie Mohr who is a #HELLPsyndrome survivor and who inspired #AClimbforHELLP, is climb… https://t.co/Z7a7VieobQ
The Preeclampsia Foundation's advocacy priorities are focused on supporting efforts to reduce maternal and infant illness and death due to preeclampsia, HELLP syndrome, and other hypertensive disorders of pregnancy. Our advocacy objectives are centered on providing patient support and education, raising public awareness, increasing research investment, and improving healthcare practices and quality.
The advocacy agenda includes:
The Preeclampsia Foundation is encouraging states to utilize educational materials that can help women, their families, and their healthcare providers recognize and appropriately respond to symptoms of preeclampsia. For example, California and New York have distributed Preeclampsia Foundation resources to hundreds of hospitals across their states to improve patient and provider awareness of and responsiveness to preeclampsia symptoms.
May is recognized by the federal government as Preeclampsia Awareness Month, having received a formal designation in 2013. Each year, members of Congress, governors, state legislators, and mayors across the country speak out in support of improving preeclampsia awareness, enhancing research investment, and ensuring pregnant women have access to the care they need.
The Preeclampsia Foundation continues to pursue efforts that support federal investment in clinical research at the National Institutes of Health to address preeclampsia and other hypertensive disorders of pregnancy.
In 2013, the Foundation launched The Preeclampsia Registry, a living database bringing together valuable information from those affected by preeclampsia, their family members, and researchers to advance knowledge and discover preventions and treatments for preeclampsia and other hypertensive disorders of pregnancy.
Working state-by-state with partners, the Preeclampsia Foundation strives to improve the maternal mortality and morbidity review process, and ensure that patients and their families have a voice in that process. Efforts are focused on data collection that can lead to quality improvements in the maternal healthcare delivery process.
The Preeclampsia Foundation supports policies that encourage the development of new biomarkers and treatments to manage preeclampsia and other hypertensive disorders of pregnancy.
Maternal Mortality Legislation Fact Sheet
Preventing Maternal Deaths Act
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