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PUBLIC POLICY PRIORITIES

The Preeclampsia Foundation's advocacy priorities are focused on supporting efforts to reduce maternal and infant illness and death due to preeclampsia, HELLP syndrome, and other hypertensive disorders of pregnancy. Our advocacy objectives are centered on providing patient support and education, raising public awareness, increasing research investment, and improving healthcare practices and quality.

The advocacy agenda includes:

Improving patient and provider awareness about preeclampsia signs and symptoms and how to respond
Improving policymaker awareness about preeclampsia and other hypertensive disorders of pregnancy
Growing investment in preeclampsia research and its connection to short- and long-term health risks
Collaborating with state and federal agencies to improve healthcare quality by improving the maternal mortality and morbidity review process
Advancing efforts to discover new screening and diagnostic tools and treatments

Improving Patient and Provider Awareness

The Preeclampsia Foundation is encouraging states to utilize educational materials that can help women, their families, and their healthcare providers recognize and appropriately respond to symptoms of preeclampsia. For example, California and New York have distributed Preeclampsia Foundation resources to hundreds of hospitals across their states to improve patient and provider awareness of and responsiveness to preeclampsia symptoms.

Raising Public and Policymaker Awareness

May is recognized by the federal government as Preeclampsia Awareness Month, having received a formal designation in 2013. Each year, members of Congress, governors, state legislators, and mayors across the country speak out in support of improving preeclampsia awareness, enhancing research investment, and ensuring pregnant women have access to the care they need.

Increasing Research Investment

The Preeclampsia Foundation continues to pursue efforts that support federal investment in clinical research at the National Institutes of Health to address preeclampsia and other hypertensive disorders of pregnancy.

In 2013, the Foundation launched The Preeclampsia Registry, a living database bringing together valuable information from those affected by preeclampsia, their family members, and researchers to advance knowledge and discover preventions and treatments for preeclampsia and other hypertensive disorders of pregnancy.

Improving Healthcare Practices and Quality

Working state-by-state with partners, the Preeclampsia Foundation strives to improve the maternal mortality and morbidity review process, and ensure that patients and their families have a voice in that process. Efforts are focused on data collection that can lead to quality improvements in the maternal healthcare delivery process.

Discovering New Diagnostics and Treatments

The Preeclampsia Foundation supports policies that encourage the development of new biomarkers and treatments to manage preeclampsia and other hypertensive disorders of pregnancy.

Advocacy News

Advocacy Toolkit

Fact Sheet for Policymakers

Maternal Mortality Legislation Fact Sheet

Preventing Maternal Deaths Act

Find your elected officials here!

Volunteer Center

Volunteer Handbook: Policies and procedures for registered volunteers.
Volunteer Awards: Previous recipients of volunteer awards, including the Hope Award for Volunteer of the Year.
Featured Volunteers: Meet some exceptional volunteers.

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Collection of personally identifiable information
The Preeclampsia Foundation may collect names, email addresses and other personally identifiable data about visitors when such data is voluntarily submitted to preeclampsia.org. For example, our site uses forms for visitors to register or make a donation online. Contact information from these forms is used to send information about preeclampsia or Foundation activity to our visitors. Financial information is used to bill or provide receipts to visitors in connection with their donations. To ensure the security of credit card and personal information, this Web site employs industry-standard security methods, including the Secure Socket Layers (SSL) protocol for the encryption of transmitted data. The Preeclampsia Foundation goes to great lengths to protect the confidentiality and integrity of any personal information you share with us over the Internet. In instances where we may partner with medical organizations to conduct research on preeclampsia, your participation may be expressly requested, but your permission would be required prior to sharing personally identifiable data with authorized medical organizations.

The Preeclampsia Foundation makes every effort to ensure the secure collection and transmission of sensitive user information using industry accepted data collection and encryption methodologies.

Donor Privacy Policy
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