The Pregnancy Meeting™
We spent last week in New Orleans at the Society for Maternal-Fetal Medicine annual meeting, awaiting the results of the HYPITAT II study, and learned – probably to no one’s surprise – that expectant monitoring is recommended over immediate delivery for women with pregnancy-related hypertension between 34 and 37 weeks.
The first HYPITAT study – widely heralded for the size of the population it studied and therefore strength of its results – produced a somewhat controversial recommendation. Its findings suggested we should bail out of all pregnancies affected by pregnancy-related hypertension (e.g., preeclampsia, gestational hypertension) at 37 weeks, noting better outcomes for both mother and baby. This ...
Posted in Preeclampsia Information on January 28, 2014 by Website
BY JAIME NOLAN (Co-Chair with Kristy Heer of the tenth annual Saving Grace - A Night of Hope benefit to be held in Minneapolis on September 12, 2014)
Baby Grace with her parents in 2004
Ten years ago I was 25 weeks pregnant with my first child and had nothing but hopes and dreams for a future with my newborn. Little did I know what was going to happen within a matter of weeks and that my entire life would ...
Posted in Preeclampsia Information on January 03, 2014 by Website
The year ahead is poised to be an incredibly exciting and productive time for the Preeclampsia Foundation and our mission to improve outcomes for mothers and babies. Please join us as we resolve to:
- Work with dozens of companies and researchers developing better diagnostic and prediction tools. We are growing ever closer to understand the root causes of preeclampsia. This continuing research includes potential therapies that may give our babies the opportunity to safely develop, preeclampsia-free.
- Register the pregnancy histories of 10,000 women in The Preeclampsia Registry. If you have not enrolled, we invite you to do so and refer others, even loved ones who have NOT suffered from preeclampsia. To accomplish Resolution 1, we will need #2!
- Launch our redesigned mobile-friendly ...
Answer: Every woman who ever uttered the words, "If only I knew..." after being stricken with preeclampsia.
A Message from Executive Director Eleni Z. Tsigas
The executive summery of the eagerly anticipated new guidelines for the diagnosis and management of hypertension in pregnancy was just published by the American College of Obstetricians and Gynecologists (the College) in the electronic version of their November journal.
The guidelines include a recommendation to provide preeclampsia education to all patients as a means of improving pregnancy outcomes. Healthcare providers need to inform women during the prenatal and postpartum periods about the signs and symptoms of preeclampsia and stress the importance of contacting healthcare providers if these are evident.
The College is assuring its members that this can be done without increasing patient anxiety and by using effective health communication practices. We can help with that. Our ...
Thank you for your fantastic Promise Walk support in 2013! Everyone's amazing dedication and hard work brought us just shy of reaching our $500,000 goal -- and there is one more opportunity this year to build upon this already impressive fundraising total. That's through Employer Matching Gift Programs.
So far, employer matching contributions donated during the 2013 Promise Walk season have totaled nearly $10,000!
An Employer Matching Gift Program is one where an employer matches an employee’s charitable donation, usually dollar for dollar. Some companies call this a Cash Grants Program or a Matching Grants Program. These Gift Programs can quickly multiply the impact of one employee’s donation, often quite substantially. In some cases an employer may even match up to 2 or 3 times that of the employee’s donation. But even a 1:1 ...
Posted in Preeclampsia Information on October 06, 2013 by Website
The ACOG News reported that as a result of the US Affordable Care Act, in 2014 and thereafter:
- An estimated 8.7 million American women currently purchasing individual insurance will gain coverage for maternity services.
- Insurance companies in the individual and small group markets will no longer be permitted to charge higher rates due to gender or health status.
The new law establishes a series of new benefits and protections, some of which are particularly important for women and children. BabyCenter.com provides an easy-to-understand and full report on how the Affordable Care Act affects pregnant women and their families. We're curious...how do you think it ...
This year's Saving Grace-A Night of Hope is only 10 days away -- on Friday, October 18, from 6:00 to 10:00 pm, in Iowa City, Iowa. It will occur immediately after this year's day-long Continuing Medical Education (CME) event, held in conjunction with the University of Iowa Hospitals and Clinics.
This year, our signature fall fundraising event will feature food tastings at multiple food and beverage stations donated by local chefs and served by local Iowa City celebrities. Midway through the evening, attendees will be seated to enjoy coffee and desserts during a special program, including featured entertainment and the annual Foundation award presentations.
Entertainment will include comedian John Bush and the Nova Singers, a 20-voice ensemble with ...
Posted in Volunteer Happenings on October 05, 2013 by Website
Johanna Aiken is the 2013 recipient of The Preeclampsia Foundation's annual Hope Award for Volunteer of the Year. This prestigious award will be presented to Aiken at its annual benefit dinner, Saving Grace - A Night of Hope, on Friday, October 18, 2013 in Iowa City. The award recognizes an individual who epitomizes the true spirit of volunteerism and has made significant contributions to the Foundation in the past year.
"Johanna has been an instrumental member of our volunteer leadership, helping to build the presence of our signature ...
Posted in Preeclampsia Information on October 05, 2013 by Website
The launch of The Preeclampsia Registry™ is off to a great start. Three hundred individuals have entered information that will help generate hypotheses and test ideas. Investigators are already planning research studies that will use this unique data set. Nowhere is it more true than in a disease registry that every person makes a difference. We look forward to more of you sharing your pregnancy history and longer term health information.
On another note... It's been a while in coming but we are excited this week about the November publication of a patient study initiated and ...
Posted in Preeclampsia Information on September 07, 2013 by Website
Our Foundation has a growing mission to emphasize the need for monitoring and care for hypertensive moms postpartum for physical AND emotional needs. We asked our Facebook Followers these questions, in the wake of THE DAILY BEAST's recent article: "Why Are America's Postpartum Practices So Rough on New Mothers?"
- Are the US's postpartum practices too trying on new moms?
- What did you think of your postpartum experience?
- What would you have done the same or differently?
We received multiple comments on Facebook and then set up a discussion in the Community Forum on our website. Many of you had both good and bad experiences during your postpartum period. For ...
Posted in Preeclampsia Information on September 06, 2013 by Website
Last month, we posted a lengthy article titled Screening Tests for Preeclampsia. On August 14, a press release from PerkinElmer announced the launch of its new screening test for early onset preeclampsia, Preeclampsia Screen™ | T1. This month we posed questions to PerkinElmer Labs/NTD. These are the answers we received to five of the questions, which are representative of the questions you asked us.
How much will the screening test cost?
The list price of the test is $495. This will be billed to a patient's insurance, if available. If the test is not covered by a patient's insurance and the patient takes advantage of applicable payment options, they can expect to spend approximately $200 out of pocket for the test.
Will my ...
Margaret Meade once said, "Never doubt what a small committed group of citizens can do to change the world. Indeed, it is the only thing that has."
At the Preeclampsia Foundation, we like to say, "Never doubt what a large cohort of preeclampsia survivors can do to catalyze research. Indeed, it is the only thing that will."
Welcome to our Special Research Edition of Expectations.
I've heard thousands of stories with poor outcomes that started with "If only I had known" or "If only I had known and pushed harder to be taken seriously." What women wanted to know were the signs and symptoms of preeclampsia. With that information, they would have immediately responded to that unrelenting headache or the searing pain running up over the shoulder. They would have known to push back, if their complaints weren't taken seriously, with a request to be have their blood pressure checked, be seen by an expert, or have blood drawn for ...
Posted in Preeclampsia Information on August 03, 2013 by Website
Adelaide C. Ward Women's Heart Health Center at University of Kansas Hospital is making a difference!
Left to Right in Photo: Karin Morgan, Program Coordinator for Hospital City; Sonya Parashar, Research Assistant; and Dr. Ashley Simmons, Medical Director of the Adelaide C. Ward Women's Heart Health Center at the University of Kansas Hospital shared with us this news.
The Preeclampsia Foundation's brochures have been fundamental in our quest to better serve our ...
Pennsylvania State Sen. Bob Mensch (R - 24th District) advocates for preeclampsia awareness and writes about his experience with the Lehigh Valley Promise Walk.
Read his guest column in the Delaware County DAILY TIMES.
In June, Americans celebrate Father's Day, a holiday that can be bittersweet for preeclampsia patients and their families, many of whom have experienced recent and past losses or endured harrowing scares. The Foundation often describes survivors of preeclampsia as members of "the Silent ...
Posted in Preeclampsia Information on June 05, 2013 by Website
This article appeared in the May 2013 edition of PRE-EMPT NEWS.
On May 27, 2013, PRE-EMPT in collaboration with MCHIP, organized “Preeclampsia 2013: Global Symposium” as a satellite event to the Women Deliver conference in Kuala Lumpur, Malaysia.
Posted in Preeclampsia Information on June 05, 2013 by Website
Some efforts to understand preeclampsia focus on risk factors and causes (or mechanisms). Understanding the "how" and the "why" of the condition could provide effective ways to prevent it from occurring or to slow its progress. Evidence shows that certain factors, such as pre-pregnancy obesity or a first pregnancy, put women at higher risk for the condition. A recent NICHD spotlight described some of the Institute's specific studies on the risk factors for preeclampsia, including ...
GUEST BLOG BY MARSHALL UKPOMA
From the shores of the Atlantic Ocean, Lagos-Nigeria, over the lovely Indian Ocean to the beautiful city of Kuala Lumpur (KL), Malaysia, it certainly was worth flying over 15 hours to arrive at the Kuala Lumpur convention center for the Women Deliver 3rd Global Conference.
According to President of Women Deliver Jill W. Sheffield, guests ...
The first official National Preeclampsia Awareness Month (May 2013) was supported by many Web content partners. Feature articles and blogs appeared in many places. Among them were the following. We are grateful to all who shared information about preeclampsia on our shared mission to raise awareness, educate patients and health care providers, improve the quality of care, accelerate research for a cause and a cure, and support all affected by the hypertensive disorders of pregnancy. Common themes among the feature articles and blogs were Preeclampsia Awareness Saves Lives, Empowering Patients & Health Care Providers, Preeclampsia & Heart Health, Call to Accelerate Research, and Global Access to Care. ...
Nadine Brunk, a Certified Nurse-Midwife, started a program called Midwives for Haiti (MFH). We’ve been talking to Nadine about how we can extend our work in patient and community education to prenatal care settings like those found in Haiti. I feel like we have much to learn from Nadine, as one minute with her blog will show you. Recently, she shared this amazing story with us.