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Periodically, the Preeclampsia Foundation makes arrangements with investigators to make enrollment information available about their studies. The following preeclampsia research trials have been approved by Institutional Review Boards. If you are interested in participating in one of the following studies, please contact the primary study investigator directly to inquire about enrollment. Listing of these studies on this site does not constitute an endorsement or recommendation by the Preeclampsia Foundation.
Preeclampsia survivors and those at risk for these pregnancy complications should seek to understand the benefits, alternatives, and risks of participating in any research study, including those intended to study prevention or therapeutic interventions. Please know that the choice to participate in any research study is up to you.
The Preeclampsia Registry has teamed up with a group of doctors and scientists to conduct a short survey on various preeclampsia tests and treatments that are not yet available for patients. Study participants will help researchers understand how patients feel about these potential tests and treatments.
The online survey can be taken via a mobile device or computer through The Preeclampsia Registry. It takes about 10 minutes to complete the survey and doesn't need to be completed all at once. As with all information provided to The Preeclampsia Registry, it will be de-identified and never shared in a way that identifies participants.
Several preeclampsia researchers are collaborating with rEVO Biologics, a company developing a treatment for preeclampsia, to better understand the patient's journey through diagnosis, management, treatment, and delivery -- not necessarily in that order! Analyzing thousands of real-world patient experiences will help us to develop better education tools and processes, and to advocate to healthcare providers for improved patient engagement. This survey is being administered by The Preeclampsia Registry, a service of the Preeclampsia Foundation.
Only those who completed their first enrollment questionnaire to The Preeclampsia Registry will be eligible to take this survey. If you haven't finished your questionnaire, simply log-in to the Registry at www.preeclampsiaregistry.org and select "Finish a Questionnaire that I Started" from your MyRegistry page.
We are working with external investigators to analyze data from The Preeclampsia Registry to answer a variety of research questions.
Have you or any of your family members EVER had preeclampsia or high blood pressure in pregnancy?
Please consider enrolling in The Preeclampsia Registry at www.PreeclampsiaRegistry.org. Preeclampsia and related hypertensive disorders of pregnancy are life-threatening to the mother and her unborn baby. Your story, medical and pregnancy history, and ongoing health reporting will help scientists unravel all the pieces of this puzzle.
Our goal is to have well over 10,000 participants including women directly affected, their sisters, and even friends who were not affected (to serve as “controls”). To learn more or enroll, go to www.PreeclampsiaRegistry.org. If you have questions, please email Registry@Preeclampsia.org.
In addition, ClinicalTrials.gov is a registry of most federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details.
Investigators interested in our Study Participant Recruitment Services should contact the Preeclampsia Foundation at firstname.lastname@example.org.