Mismanagement of care? Need some input

This section is for discussions with other women who have probably been through the same signs/symptoms that you may be experiencing. Please note, we cannot offer medical advice and encourage members to discuss their concerns with their doctors. New members, come on in and introduce yourself!
joannek
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Re : Mismanagement of care? Need some input

Postby joannek » Sat May 10, 2008 06:57 pm

Just one tidbit to throw in there...Sara was born at 31 weeks and a thyroid test came back abnormal on her that the doc said almost all preemies test abnormal for the first time, but most likely will test normal a little later on (which she did). I'm sorry I don't have more specifics on this. Maybe this will be the case for your little one?

melib
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Re : Mismanagement of care? Need some input

Postby melib » Sat May 10, 2008 03:45 pm

Caryn, yes they (all 6) are CNMs who work with 3 OBs in the office.

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caryn
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Re : Mismanagement of care? Need some input

Postby caryn » Sat May 10, 2008 01:10 pm

Meli, were the midwives CNMs?

sheri-ct
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Re : Mismanagement of care? Need some input

Postby sheri-ct » Sat May 10, 2008 12:05 am

Glad you and your baby are fine, but I would be fuming too.  I also have a thyroid condition that went "unmanaged" for years.  I suffered through 4 years of infertility and also got pre-e when I finally did get pregnant.  I still wonder if my thyroid had been treated years ago, maybe things would have been easier for me.  IMO, most medical providers are uneducated regarding appropriate TSH levels.  The revised "acceptable" rage per my endocrinologist is .3-3.....anything outside that range IS a problem.  The problem is that most medical providers just look at the range that the lab spits out (from years ago) and the disorder goes untreated.  I would bring it up with them. It might help another patient.

sonja
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Re : Mismanagement of care? Need some input

Postby sonja » Sat May 10, 2008 11:13 am

Wow Melissa. I can imagine that this will be a hard conversation for everyone. I really haven't had any experience with this type of conversation. Best of luck to you and I hope that you are able to get some peace of mind.

Take care.

melib
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Mismanagement of care? Need some input

Postby melib » Sat May 10, 2008 10:50 am

So, I'm trying not to blame care providers for an early, crazy delivery and feeling sick for the last few months of my pregnancy. After all, I'm getting better and my baby is recovering - we are both alive. I would like some input thought on how to approach the midwives who were involved in my care for the duration of my pregnancy, because I think they did not do a good job.
So, I met an MFM specialist a few hours before my delivery when I was referred as an outpatient to see him at a larger hospital further from home. Yesterday, we went over some of my lab work from my pregnancy, and it turns out that when my TSH levels were measured in early March (I was ~26 weeks), I had less than 0.02 mIU/L TSH, which indicates uncontrolled hyperthyroidism. I had complained several times of some of the major symptoms of this (night sweats, inability to sleep, racing heart) and was just asked if I had anxiety issues. No one at the OB practice informed me of the lab values, and it seems that someone signed off on this lab value without any thought of further action. After delivery, I am still completely hyperthyroid. And it seems that any weight gain I did have was swelling, as I'm already (7 days pp) at my original prepregnancy weight - another thing they really missed. Well, after some journal reading this morning, I am able to cite multiple medical journal articles that indicate that serious hyperthyroidism during pregnancy can significantly increase the risk of low birth weight infants and severe preeclampsia. Ok, that's where I ended up. I know there is no way to tell what triggered what, but 'coincidence' seems like a weak association. Additionally, my newborn's TSH level is abnormal, and this has me fuming.
I intend to set up a file review with the midwives next week. Anyone have experience with this type of situation (medical mismanagement)? What is the best approach to confronting care providers? I need to talk this through with them for my peace of mind.
Thanks for any thoughts/input.


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