by jjmccreary (2 Posts), Tue May 24, 2005 04:07 pm
Hello Central Floridians! My name is Jeni McCreary and I am the Group Coordinator for Central Florida for the Preeclampsia Foundation.
Three years ago, I gave birth to my angel baby at 31.4 weeks (daughter- Halle Christene). I had severe P/E with the onset of kidney failure. My daughter weighed 3 lbs, 9 oz. and was in the hospital for approx. 5 weeks. The nurses in the NICU called my daughter, Ã¢â‚¬Å“Little Miss FeistyÃ¢â‚¬Â and let me tell you- Halle Christene is living up to her nickname! She is our angel girl and we are so blessed to have her in our lives. Both she and I are healthy and happy.
I went through the P/E experience deciding I was done having children. However, when Halle turned two and in the spirit of blessingsÃ¢â‚¬Â¦ my decision changed. I went to my high-risk doctor who ran some tests and we had long conversations about P/E. The tests returned with a 30-50% chance of getting severe P/E again. Yikes. My husband immediately shook his head Ã¢â‚¬Å“NOÃ¢â‚¬Â and said, Ã¢â‚¬Å“WeÃ¢â‚¬â„¢ll adoptÃ¢â‚¬Â. While I agree that adoption is something to look intoÃ¢â‚¬Â¦ I still have a longing in my heart to carry a child on my own. I started doing research and felt like I had to turn the negative frustration about this disease into positive education and proactive action. You can imagine my surprise to find lack of education, lack of awareness for pregnant mothers and the Healthcare industry. It was equally surprising to realize not much government funding for research, prevention and cures is being afforded or championed!
That is why the PE Foundation is so amazing. They are an incredible group, working at so many levels to champion the fight for awareness and education surrounding this disease. I want to encourage networking, the sharing of ideas, stories and suggestions to PE Foundation or myself. It is so important for us to get to know one another and work toward the common goal: education of Preeclampsia and other pregnancy-induced hypertensive illnesses.
I wish I had known someone was available to share with me, visit with me in the hospital for those weeks prior to delivery, to help me understand that I was not alone in this battle. You are not alone if you are going through PE or pregnancy-induced hypertensive illnesses. Please reach out!
Thank you for taking the timeÃ¢â‚¬Â¦ it starts with just one. Looking forward in hearing from you real soon!
Group Coordinator- PEF Central Florida
31.4W Severe P/E, 1 daughter (age 3)