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In late April, the Preeclampsia Foundation continued its federal advocacy efforts, meeting with representatives of the National Institutes of Health in Bethesda, Maryland. Joined by Preeclampsia Foundation Medical Advisory Board member Dr. James Martin, who was recently inducted as the President of the American Congress of Obstetricians and Gynecologists, the Foundation sought to understand the breadth of preeclampsia research being conducted across the NIH institutes and centers.
The Foundation came to the meeting with three simple messages and requests: the institutes should collaborate to share research findings; NIH should report its annual spending allocations dedicated to preeclampsia and related research; and NIH should work with the Foundation and other partners to more effectively improve communication about preeclampsia research findings.
Through its efforts, the Foundation learned that 9 of the 27 institutes/centers at NIH conduct or have recently conducted research on preeclampsia. These range from the National Institute of Child Health and Human Development and National Heart Lung and Blood Institute, which together conduct a majority of research in this field, to the National Institute of Environmental Health Sciences and the National Cancer Institute.
During the meeting representatives from each institute presented on their areas of research focus and sought to learn more about the Foundation's research efforts and ways the Foundation might help make NIH information more readily available to patients and providers.
To build on this meeting, the Preeclampsia Foundation is seeking legislative language in partnership with members of Congress that would further encourage NIH institute collaboration in the field of preeclampsia research and require NIH to report its funding allocations for preeclampsia research. With this information, the Foundation hopes to begin to advocate for more efficient, effective and additional research dollars to ensure preeclampsia is and remains a focus within women's and maternal-fetal health research.
On January 2, 2013 I was 23 weeks pregnant with our first child and we just found out that we were... Read More