Posted in Preeclampsia Information on January 28, 2014 by Website
BY JAIME NOLAN (Co-Chair with Kristy Heer of the tenth annual Saving Grace - A Night of Hope benefit to be held in Minneapolis on September 12, 2014)
Baby Grace with her parents in 2004
Ten years ago I was 25 weeks pregnant with my first child and had nothing but hopes and dreams for a future with my newborn. Little did I know what was going to happen within a matter of weeks and that my entire life would ...
Posted in Preeclampsia Information on June 05, 2013 by Website
This article appeared in the May 2013 edition of PRE-EMPT NEWS.
On May 27, 2013, PRE-EMPT in collaboration with MCHIP, organized “Preeclampsia 2013: Global Symposium” as a satellite event to the Women Deliver conference in Kuala Lumpur, Malaysia.
GUEST BLOG BY MARSHALL UKPOMA
From the shores of the Atlantic Ocean, Lagos-Nigeria, over the lovely Indian Ocean to the beautiful city of Kuala Lumpur (KL), Malaysia, it certainly was worth flying over 15 hours to arrive at the Kuala Lumpur convention center for the Women Deliver 3rd Global Conference.
According to President of Women Deliver Jill W. Sheffield, guests ...
The first official National Preeclampsia Awareness Month (May 2013) was supported by many Web content partners. Feature articles and blogs appeared in many places. Among them were the following. We are grateful to all who shared information about preeclampsia on our shared mission to raise awareness, educate patients and health care providers, improve the quality of care, accelerate research for a cause and a cure, and support all affected by the hypertensive disorders of pregnancy. Common themes among the feature articles and blogs were Preeclampsia Awareness Saves Lives, Empowering Patients & Health Care Providers, Preeclampsia & Heart Health, Call to Accelerate Research, and Global Access to Care. ...
Nadine Brunk, a Certified Nurse-Midwife, started a program called Midwives for Haiti (MFH). We’ve been talking to Nadine about how we can extend our work in patient and community education to prenatal care settings like those found in Haiti. I feel like we have much to learn from Nadine, as one minute with her blog will show you. Recently, she shared this amazing story with us.
Posted in Volunteer Happenings on April 04, 2013 by Website
BY REBEKA WHITMAN
It wasn't until my sister Rikki became pregnant with her first child that I understood the full meaning of pregnancy problems. She was 35, had Ulcerative Colitis, an autoimmune disease, and had difficulty becoming pregnant. She and her husband were looking forward to the birth of their son. On November 8, at 22 weeks, she developed HELLP Syndrome and the only option was to deliver the baby. Rikki's liver, heart and lung functions were deteriorating significantly. As I waited at the hospital with other family members, I asked the doctor, "Can't you wait until he is a few weeks older so that he has some sort of chance?" The doctor told me if they ...
Are you a Pinterest addict? Enjoy expressing your life experiences visually? Then join our 2013 "Virtual Memorial & Survivor Quilt" board. The Virtual Quilt board is a compilation of images from any individual who wants to contribute in honor or in memory of loved ones impacted by preeclampsia, HELLP syndrome, or other hypertensive disorders of pregnancy. Share your feelings and experience with preeclampsia through pin art!
Having your pin as a part of the quilt only requires ...
LETTER FROM THE EXECUTIVE DIRECTOR, ELENI TSIGAS
It's hard to imagine the impact that a public awareness event like The Promise Walk for Preeclampsia™ can have on the consciousness of the public, our elected officials, health care providers and researchers, but with 44 walks scheduled in major markets across the United States, we are making strides and delivering hope!
Ten years ago, I daresay not too many people had heard the word "preeclampsia." Now the media often cover the latest research or provide helpful education, for example, CNN's February article on five things you need to know ...
It's March... which in Florida means spring training for Major League Baseball. In fact, I can practically hear the crack of the bat just ten minutes from our headquarters! But the real home runs are happening for the Preeclampsia Foundation all across the country. We're halfway to Preeclampsia Awareness Month, and our Promise Walk teams all across the United States are knocking it out of the ballpark!
Fundraising teams have used our new tools and are doing a superb job, putting our Promise Walk $7,000 ahead of where we were last year. And not only will we be celebrating our first-ever national designation, but 16 states and cities have declared May Preeclampsia Awareness Month in their jurisdictions. Read on for an interesting article that describes why that is so important to our ...
Posted in Health Information on March 04, 2013 by Website
Awareness that good outcomes don't always happen helps us prepare while hoping for the best.
Just because a pregnancy is classed as high-risk doesn't mean that it will become medically complicated - and just because a pregnancy is classed as low-risk doesn't mean that it won't. Many of us know this firsthand; we were low-risk right up until the complications developed in our first preeclamptic pregnancy, or went into a subsequent pregnancy classified as high-risk, only to breathe a sign of relief as we delivered a full-term healthy baby.
We've all seen the list of risk factors for preeclampsia: first pregnancy, personal or family history of preeclampsia, underlying conditions like chronic hypertension or lupus or autoimmune conditions, obesity, history of infertility or prior miscarriage. Awareness of your ...
Posted in Heard on the Hill on March 04, 2013 by Website
One of the wonderful aspects of living in the United States is that you can directly influence the government process at the local, state, and federal levels. This influence only requires passion and persistence. While the Preeclampsia Foundation is thrilled that our collective passion and persistence led to May 2013 becoming the first federally-recognized National Preeclampsia Awareness Month, our work is far from over. We still need your help to secure more state and local preeclampsia awareness proclamations.
You may be asking why a local or state proclamation has value if the federal government already designated the month of May for preeclampsia.
Posted in Preeclampsia Information on March 04, 2013 by Website
Be aware of your long-term health risk factors and communicate them.
We've all seen the risk factors for cardiac disease: high blood pressure, high cholesterol, inactivity, obesity, smoking, and history of preeclampsia. Awareness of your own risk factors is key to managing them as you age and might lower risk of cardiac disease.
A recent analysis of the accuracy of our recall of our pregnancy histories by a team of researchers at the Harvard School of Public Health showed that we may not remember our complicated pregnancies well enough for questions about them to be a useful part of a screening tool. For our recall to be useful as a clinical tool in screening for heart disease, we need to be mostly accurate in our recollections years after delivery. (Imagine a 55 year old in her internist's office this week, asked for details of her pregnancy 30 years ago...) But the analysis also showed that as severity of our pregnancy complications increased, accuracy of ...
Posted in Preeclampsia Information on March 03, 2013 by Website
"Loss makes artists of us all as we weave new patterns in the fabric of our lives."~ Greta W. Crosby, Author of Tree and Jubilee, a book of meditation
Writing about any situation will help you gain perspective on it. Many people find they can identify and express their feelings through journaling. This expression not only contributes to our self-awareness, it also contributes to healing through the letting out of emotions, self-acceptance, and the identification of any negative self-talk patterns that we should and can intentionally replace with positive ...
Posted in Preeclampsia Information on January 31, 2013 by Website
Remember the moment when you embraced maternity clothing? After a few months wearing "roomy" jeans and shirts, you made the leap into a wardrobe consisting of blouses with an empire waist.
There are very few times in our life you wear a patient status so conspicuously. Walking around in maternity clothing informs everyone of your current status. Unlike most other conditions, random strangers remark upon your wellbeing. When things are going well, these remarks can be appreciated as well intentioned. When things are not going well, these random comments can be heartrending.
It is hard to wear our medical status in public. It is hard to bear our soul. But pregnancy is finite; we only have a few months of "showing." Sometimes we have been blessed and become the parent of a new baby and sometimes a life ends before it begins.
The body returns, but a story remains. And I ask you, "Are you showing?"
There is a patient art movement spreading around the ...
Unless you have been completely untethered from all media this week, you know that a popular character on British historical drama Downton Abbey died from postpartum eclampsia, shocking and devastating over 8 million devoted viewers. In her death, Lady Sybil became our unwitting celebrity spokesperson!
With advance knowledge of this surprising plot element, thanks to our sister organization in the UK where the show aired last fall, our team developed a simple but savvy public relations campaign, including an Op-Ed piece in the Daily Beast, a press release, a newly released
Posted in Preeclampsia Information on January 31, 2013 by Website
When we think about maternal deaths, visions of thin, malnourished women lying on cots in thatched-roof cots immediately come to mind, when in fact they occur right in our backyard. In the U.S., preeclampsia is one of the four most common reasons for maternal death. On an average, there is approximately 1 maternal death for every 100,000 births, but for African American women, this number triples. African American women are three times more likely to die from preeclampsia and other childbirth-related issues and no one knows why.
As our society becomes more culturally diverse, this problem will indirectly affect all of us. Our daughters and granddaughters may no longer look like us ethnically but carry genes that places them at risks for complications associated with a particular race. While we attempt to unravel the mystery of what causes preeclampsia, an equally mystifying dilemma is to determine why are African American women more at risk for developing and then dying ...
Posted in Preeclampsia Information on December 05, 2012 by Website
Encore Public Relations was named a Bronze Stevie Winner in the PR Campaign of the Year/Community Relations category in the 9th annual Stevie® Awards for Women in Business on November 9 for their work with the Preeclampsia Foundation. Encore Public Relations lead strategy efforts and execution for a multi-platform campaign that raised awareness during the 2012 annual Promise Walks for Preeclampsia across the country.
"Ironically, it was during this same weekend last year when we had the good fortune to meet Laurie and Elaine in New York City," said Eleni Tsigas, Preeclampsia Foundation's executive director. "The women were in town for another honor they were receiving and via wonderful circumstances, we were brought together at Saving Grace, our annual benefit gala."
Laura Archbold, principal of Encore Public Relations, upon receiving their award, said. "We humbly accept this honor on ...
Posted in Health Information on December 05, 2012 by Website
By Dr. Anne Wallis ~ Who remembers the first season ER episode "Love's Labours Lost"? The answer: pretty much anyone who ever watched ER! In the episode, a pregnant woman presents to the emergency room with a complaint of bladder problems, has a seizure and later dies. This was my first exposure to the hypertensive disorders of pregnancy. Eclampsia is, thankfully, rare, but it carries a high case fatality rate for the mother and/or the infant. Gestational hypertension and preeclampsia are far more common, affecting between 5% and 8% of all pregnancies in the US. Moreover, these conditions are on the rise and globally, these conditions are a leading cause of maternal and infant illness and death.
Obstetric providers are acutely aware of the dangers of preeclampsia because of its potential severity and rapidity of onset and progression, making high-quality prenatal ...
I was thrilled to be able to announce to resounding applause, "It's official! The US Department of Health and Human Services has declared May National Preeclampsia Awareness Month!" at our annual benefit dinner, Saving Grace - A Night of Hope, on Friday, Oct. 26, in Point Clear, Alabama. The intimate evening was hosted by Leslie Weeks, former board member of the Preeclampsia Foundation and Owen Bailey, hospital administrator for University of South Alabama's Children's & Women's Hospital.
Board members and long-time volunteers of the Preeclampsia Foundation flew in from around the country to take part in this annual benefit dinner, this year held in a beautiful and tranquil setting, the Sonny Hill Polo Complex. A buffet style dinner was held in the beautifully appointed pavilion, followed by a program under a delicately lit tent that overlooked the water. Dr. Gabriella ...
Shelly Bridgewater was 25 years young when she died in 2005 from preeclampsia. Her best friend, Bree Housley, wrote a book about their unlikely friendship and the impact Shelly, "the social butterfly," had on her life. We Hope You Like this Song launches this week and is available in our Marketplace. We talked with Housley about inspiration, Karaoke, and how the Preeclampsia Foundation helped her healing.
What inspired you and your sister to embark on your yearlong tribute to Shelly ...