Hypertensive disorders of pregnancy cause 14% of maternal deaths each year worldwide. Aren't 57,000 mommy deaths ca… https://t.co/4uH7GVT71p
We are excited to announce the launch of The Preeclampsia Registry™, a patient and family database designed to aid and accelerate preeclampsia research! Whether you are somebody who had a hypertensive disorder of pregnancy like preeclampsia, eclampsia or HELLP syndrome, or are a family member of somebody who did, we invite you to enroll and participate in The Preeclampsia Registry.
The Preeclampsia Registry™ is the first of its kind to focus solely on hypertensive disorders of pregnancy to bring together survivors, family members, and researchers from all over the world with the purpose of developing a comprehensive picture of preeclampsia and discovering preventions and treatments, including ones that will reduce its long-term impact.
The Preeclampsia Registry™ is a place to share your health and pregnancy history and even pose your own research questions, thus creating a significant resource for researchers to gather data and start new studies. Participation in any study is entirely optional.
To participate in The Preeclampsia Registry™ :
In the future, you may be asked to sign a medical records release form to allow The Preeclampsia Registry Administrator to request your medical records.
After enrollment in the Registry, and with your permission, you can expect the following:
We appreciate your continued support to help us accelerate our understanding of preeclampsia. If you have any questions, please email our Research Coordinator, Alina Brewer, at [email protected] or call us at 321-421-6957.
The Preeclampsia Registry is a "Living Database" bringing together those affected, their family members, and researchers to advance knowledge and discover preventions and treatments for preeclampsia, HELLP syndrome, and related hypertensive disorders of pregnancy.
