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PARTICIPATE IN RESEARCH

Move preeclampsia research forward for other women like you

Last Updated on December 02, 2021


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PREECLAMPSIA
is a leading cause of
maternal mortality
and prematurity

Your Voice, Your Experience,

Your Legacy Can Help Save Lives

 

Why participate in research?

Patients like you are central to moving preeclampsia research forward.

Although we now understand more about what causes preeclampsia, there are still so many unanswered questions that your experience can help us understand:

  • Why does preeclampsia happen in some pregnancies and not others?
  • Why does preeclampsia happen to some women who have no risk factors?
  • Why is preeclampsia more severe in some patients?
  • How does preeclampsia affect women beyond their pregnancy experiences, including their long-term physical and mental well-being?

All of these questions and more are being studied by researchers around the world and right here, thanks in no small part to the Preeclampsia Foundation community and our continued drive to fund and support research on preeclampsia, HELLP syndrome, and related hypertensive disorders of pregnancy.

As a patient, the choice to participate in any research study is up to you. Here’s how YOU can get involved.

 

Join The Preeclampsia Registry

The Preeclampsia Registry is a secure research database that brings your pregnancy experience(s), medical information and even your DNA, if you wish, together with leading researchers to make preeclampsia a disease of the past.

As a participant, you will join thousands of other women and families in supporting several research studies to accelerate the discoveries of the causes of preeclampsia and better options for prevention, diagnosis, and treatment.

LEARN MORE

In addition, ClinicalTrials.gov is a database of most federally and privately supported clinical trials conducted in the United States and around the world. This is a valuable resource to search for clinical trials in your area and to learn more about preeclampsia studies.

 

Patients As Research Partners

Patients are the benefactors of medical research and in the past,were often viewed as passive subjects to further new treatments and understandings of medicine. Today we have seen a shift thanks in part to advocacy organizations like ours, to recognize patients as an "n-value" and more to provide a unique, personal experience to research.

Your experiences help researchers at every stage of the research process: from study design, to recruitment, to driving participation, and even sharing results.

The Preeclampsia Foundation is regularly invited to provide your patient perspective as members of our community. For more information about patients as research partners and other ways to participate in research, please contact our Research Manager.

Join the Registry

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Share Your Story

It is our collective voice that reduces isolation for others, raises awareness and improves healthcare practices. Let's raise up our voices so more women know about preeclampsia and HELLP syndrome and less women have adverse outcomes!

 

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