The Preeclampsia Registry was born out of a call to action by preeclampsia survivors to create a place where you can use your experiences and stories to further research and become partners in finding answers to better prevent, treat, and one day cure preeclampsia.
The Preeclampsia Registry brings together preeclampsia survivors, family members, and researchers to engage in the common purpose of advancing knowledge and treatment of preeclampsia.
After providing consent, you will be asked a series of questions about your health, family, and pregnancy history. This information is made available to approved preeclampsia researchers to help them with their studies.
The registry is also a “living database,” meaning we’ll ask you to give us an update at least once a year and we may ask you additional questions as there are new ideas to explore.
We will never share any information that can identify you, such as your name, date of birth, and contact information.
An authorized representative may complete the questionnaire on behalf of a woman who had preeclampsia, but died or is disabled as a result.
We believe that together, as partners in research, our lived experiences and collective voices will help advance research to find a cause and a cure!
First, you will complete a consent form, then our participant survey.
It is our collective voice that reduces isolation for others, raises awareness and improves healthcare practices. Let's raise up our voices so more women know about preeclampsia and HELLP syndrome and less women have adverse outcomes!
Answers to our most frequently asked questions about the registry
The Preeclampsia Registry is a valuable resource that you can turn to when posing new questions, testing new hypotheses, and building study cohorts. As a “living database” that i...
According to the World Health Organization, preeclampsia is one of the least funded areas of research, especially when considered against Disability Adjusted Life Years (DALYs). The Preeclampsia Found...
The Letter of Intent period is CLOSED for the 2020 Peter Joseph Pappas Research Grants funding program. Decisions will be rendered in December 2020 and the next funding round will be announced next ye...
RESEARCH FUNDING Peter Joseph Pappas Research Grant Program September 6, 2020 - The period for receiving Letters of Intent for the 2021 funding season has CLOSED. Invitations for full applicatio...
Melbourne, FL – December 30, 2020 – The Preeclampsia Foundation announces the recipients of its 2021 Peter Joseph Pappas Research Grants, a funding program designed to accelerate p...
Title: Vitamin D in the womb may be protective for babies born from pregnancies complicated by preeclampsia Article Title: Associations of Cord Blood Vitamin D and Preeclampsia With Offspring B...
August 6, 2020 – Melbourne, FL – The Preeclampsia Foundation is seeking Letters of Intent for the Peter Joseph Pappas Research Grants funding program, designed to accelerate preeclampsia r...
TREATMENT Results of a trial to test a new medication for preterm preeclampsia: the PRESERVE-1 Trial AJOG Preterm preeclampsia is a rare form of preeclampsia that occurs at 23-30 weeks of...
LONG-TERM EFFECTS Adverse Pregnancy Outcomes and Long-term Maternal Kidney Disease: A Systematic Review and Meta-analysis JAMA Network Open Researchers sought to combine the available data to s...